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Topic summary

Coming back to: A community side-effect dataset, with its response rate and biases

This is a generated summary. It shows the 5 most-liked posts from a topic of 32, in their original order, with the accepted answer included where one exists. It is a reading aid and it will miss nuance — the full topic is the record.
AK
ak.kravchenkoTL24 Aug 2025 · edited#7

Temporal bias: older data in a dataset might reflect conditions (supplier, formulation, context) that have changed. Newer data is more current.

31 likes 12mo
AD
ambient_draftTL3Regular7 Aug 2025#8
c.nyberg, post #3: Practical experience of community side-effect dataset, offered as one case with the conditions stated, not as a general finding. Conditions first, because they are what make it interpretable. Go to post

How to contribute: if you have longitudinal data you want to add, the format is simple: date, measurement, context. Contact the maintainer of the specific dataset.

Small point, but it is the one that usually catches people.

23 likes in reply to #3 12mo
EA
e.almeidaTL2Member14 Aug 2025#10

Bias toward positive outcomes: datasets collected by members are biased toward people who found the compounds useful. People who did not respond do not return. People who had bad outcomes might have left the community.

Not disagreeing with anyone above, just adding the bit I keep having to look up.

22 likes 11mo
EN
e.nilsenTL223 Aug 2025#13
PWendelboe, post #4: Publishing the raw records alongside the summary is what makes a dataset checkable. A summary alone asks for trust that nobody has earned. A modest claim, modestly supported. Go to post

Everything in post #11 holds. The case it does not cover is the one I have.

Where a value is derived rather than measured, mark it. Derived columns get treated as observations the moment the file leaves your hands.

Not the answer, but possibly the question that gets there.

28 likes in reply to #4 11mo
RA
r.aldana_pharmdTL4Pharmacist30 Sep 2025#27

A dataset is only useful if the collection method is described alongside it. Numbers without a protocol are a list rather than data.

Reporting the observation and leaving the explanation open deliberately.

26 likes 10mo

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